If you have a primary school age child, then you’ve probably heard of the National Child Measurement Programme (NCMP). For 13 years, it has collected data on the height and weight of children aged 4-5 and 10-11 years old in England. This information is used to calculate what is called the ‘weight status’ of a … Continue reading Patient and Public involvement with Parents during a Pandemic
Being video production novices, we had some reservations about our ability to co-create a public engagement video when the idea was first suggested. However, we are fans of hands on learning and it was nice to put our minds to such a creative project. What could possibly go wrong? The aim of the video was … Continue reading Co-creating an engagement video: how difficult can it be?
Recently I was fortunate enough to secure an NIHR Pre-doctoral fellowship, and after a few years dipping my toes in the clinical academic world I suddenly found myself full-time in research. Knowing that my project, common child health and wellbeing outcomes across diagnostic groups, really needed input from children, young people and families, I was … Continue reading Snaking and laddering our way through PPI/E
EMPoWER - Early Mobility and Powered Wheelchair Evidence Review - was a research project to investigate whether providing powered mobility for very young children (under 5 year olds) provides more benefits than waiting until after children are 5 years or older. From the beginning, we wanted children and young people to influence the project. So we teamed up with … Continue reading EMPoWER: young people’s take on early powered mobility
People often ask me: “What exactly is engagement and PPI?” and “What am I actually meant to do?”. Commonly followed up by bemused “I have read the national, regional, professional guidance… but I still don’t understand” and the more decisive “I do know I want it to be meaningful!”. But how should one answer these … Continue reading Doing meaningful engagement